Thursday, June 28, 2012

Ego bruises

I've been too self-absorbed lately to feel like blogging. I cried every day for a couple of weeks because the doctor said my son might have autistic spectrum disorder. I was crying mostly because I saw him as perfect before, and suddenly I saw him as having something wrong with him, and as sensitive as he is to my emotions, I felt guilty that he might be absorbing a flawed self-image of himself from me because I couldn't release the judgment. I also had the typical reaction that all mothers get when told that their child may have a problem--guilt about my parenting...and for a while I thought that I should stop writing altogether, as it was taking away from time I should be spending with him.

I've been reading a lot, educating myself from all sorts of angles...and I've concluded that it's unlikely that my son is autistic or that his developmental delay will be "pervasive." Still, he's undergoing some gradual dietary changes and is on a homeopathic remedy and several flower essences. Nightly I'm giving him craniosacral check-ins and sometimes quantum touch if I can stay awake for it. On the allopathic end, I'm taking him for his first California-funded evaluation next Monday, and I have to be vigilant about having a "body of glass"...letting all energy, all judgments and labels flow through me...breathing out anything triggered...as the tendency will be to label any speech delay with some scary diagnosis, as that's what allows them to fund and provide services. 

One intuitive told me that my son is a "crystal child," one of a group of souls incarnating en masse at this time in order to help humanity evolve to a crystalline etheric form. He does actually fit the description of one of these--born large, with a bigger head than average, a sweet child who's calm, loving, and affectionate, with an intense gaze, who speaks late because he uses telepathy instead, and who is very bonded to his mother. I realized that I liked this idea because it assuaged the wound in my ego delivered by the diagnosis that my child isn't normal...and it's just a label like ASD is a label, and the truth is that he is neither worse nor better, special or different or wrong or right--he's just him, whole and perfect like any other child.


I also got my first rejection for my novel, which I know is something that must be multiply borne as a writer, but it still made me feel kind of bad. Anyhow...between the curt form rejection and unresponsiveness on the part of several beta readers, I decided that it's not at all ready and I'm back to another huge rewrite. 


So that's all kind of discouraging, but the good thing about all of it is that having my ego as a writer take a beating is allowing me to see the reason why I'm doing all of it--the fact that I love it utterly, the writing process, the creating of stories, and the joy is still there despite the invalidation.

My conclusion is the only thing that's causing me anxiety is my own ego. Because I notice that as it suffers more bruises, it's draining out the unease that has been sitting inside me for months.

16 comments:

  1. Yes! Ego is a pro at wounding itself and then repeat it constantly. You did so good at informing yourself about the diagnosis. I know a crystal child and he got a diagnosis that is similar.

    He grew up with that diagnosis hanging over his head, and when I met his mom she informed me gleefully about the diagnosis. I put it aside and treated him the only way I knew: with deep love. We celebrate our 12.5 year anniversary in October :)

    I would like to offer you something. If you want I can help you kick ego aside. Just send me a message at sylviavbruggen at gmail dot com if you want to take me up on the offer :)

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    1. I'm looking forward to talking to you soon. :) :) :)

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    1. Thank you for caring, Joshua! It means a lot.

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  3. Fique Tranqüilo, tudo vai dar certo ;)

    Abraço

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    1. Muito obrigada! Eu tambem acho, mas e bom ouvir. :)

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  4. A diagnosis is helpful if their is treatment, and to have things 'answered' sometimes feels good. I agree, however, that the so-called treatment is the same no matter what diagnosis.

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    1. I agree...I'm happy, though, that they didn't diagnose anything at the evaluation...they just evaluated him for eligibility for assistance and that was it. :) It was a couple of women and a man all in their 20's who obviously love kids. So he'll get treatment and no judgment and that makes me happy.

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  5. How did Monday go? It's hard not to get sucked into the fear. Definitely a scary thing to hear, but you are actively fighting the pull, and that's all you can do.

    The writing thing's gotta be tough, too, no matter how much one has to count on multiple rejections. The time will come.

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    1. It went better than I expected. Theo was on his best behavior, and the evaluators simply went down a checklist for him, added up points, and determined that he's delayed in speech/language and cognition, which is obvious. They made no diagnoses or judgments and were gentle about even saying what they did, so I had no embarrassing emotional outbursts. :) So he'll get speech therapy paid for by the state and that's nice.

      I'm generally feeling really optimistic about it now...since I started getting sessions with the medical intuitive, Theo's vocabulary has nearly doubled (granted it was REALLY limited before so he's still super behind the "milestone" marker...but the problem was more that he was stagnating in picking up new words, and now that's no longer the case) and after the last session, he said his first two-word utterance--twice! :) I was so happy. I still can't quite believe the intuitive is actually doing something, since we mostly just sit in silence together on the telephone, but I don't care what the reason is for his improvement, I'll take it!!!

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    2. Super cool....I guess we all learn at our own pace, and when we're ready. :-)

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  6. I"m so sorry for your medical concerns. But I love the idea of a crystal child. That sounds so beautiful. I want to live in a world with those kinds of people. :-)

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    1. Thank you, Lexa! Yes, a world of crystal people would be lovely. It's a good goal to envision... :)

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  7. I agree with Lexa and am glad that you are going about your child's diagnosis from many angles. The crystal child idea is awesome. My friend's son is 10 and had similar issues as a toddler. He still has some speech issues, but really he's no different than any of the other kids except I find him more special and sweet. Just keep loving that kid and the rest will follow! And you need writing more than ever so don't feel guilty for writing.

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  8. I'm sorry you've had a hard time lately! You're in my thoughts! x

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